This is my 90% completed memoir about life with cystic fibrosis (CF) and surviving a double lung transplant, all while trying to be as “normal” as possible.
There are lots of books about CF and transplant out there, but most of them have a few flaws: they’re old, and the technology has moved on; they’re written by parents, not the people who actually have CF; if they’re written by a transplant survivor, the survivor didn’t live very long. My book is different in that I am writing about a life I experienced, not that my parents or anyone else watched me experience, and I am coming up on my tenth transplant anniversary.
The memoir also has a strong spiritual component. Growing up in a devout Catholic family, I can’t separate my faith from my life, and I don’t try to here